Monday, 5 September 2011

A little Story of a little miracle...

This is the short version of a long story written by mommy... "Corgan Layden was born on the 27th of October 2010. He was born at 26 weeks gestation - he was 14 weeks/3 months premature. His birth weight was 520g...despite being 26 weeks he was smaller than he should have been - the previous scans had calculated he was equal to about 23 weeks...Moments before he was delivered we were told that nobody knew what to expect and whether we had any idea what we would like to do with the "fetus" (babies are only considered babies at 28 weeks) and would we want a burial...BUT, he was here! And he was perfect...the tiniest little thing we had ever seen but just so perfect...it didn't take long before his doctor came to tell me that Corgan was in a stable condition...we were told to take one day at a time...He was ventilated for 7 weeks on and off...in the first attempt he only last about 9 hours before becoming too tired, he had to be re-intubated...the second attempt at coming off the ventilator was hampered by a chest infection...The third attempt went well, he was so strong...he was then on supplementary oxygen for 3 weeks...In total he was hospitalised for 108 days! During that time he also had an inguinal hernia repair operation when he weighed just 1,69kg...He also received 6 blood transfusions during his hospital stay...he had 3 visits from an opthalmologist to check his eyes for Retinopathy of prematurity, we were told each time that his eyes look healthy...he also had two visits with a cardiologist to check for PDA, he said his heart is healthy. The first time he was discharged, he had to be rushed back and readmitted straight away...he had picked up a cold or something and really started battling to breathe...he had to be put back on oxygen when we arrived back at the hospital...that day his hearing was tested and the test was inconclusive...we later assumed that it was probably also due to the fact that he was ill...4 days later he went home for real! He is such a perfect baby, no issues, no illnesses since he's been at home...just perfect...when he had been home for a few weeks we had to take him to the audiologist to be retested - this time he got a pass! BUT, we were asked if we could come for a follow up test in about six months because some of the medications used when he was born as well as blood transfusions could have affected the nerves that make us hear...Corgan is now 10 months old and weighs 4,9kg...he had his follow up hearing test on 23 August 2011...They performed an ABR test...they have concluded that he has profound hearing loss in both his ears...he will need hearing aid on both sides too...He seems to respond well to very loud and very high pitched sounds...we are presently working with the audiologists twice a week and will probably be "fitting" hearing aids soon..."

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